Please, help in a Blood Cancer case of a 19 year old girl!-Please read the first post

[Hope]

Dear Forum members,


My family and I are undergoing very difficult times! My 19 year old sister was diagnosed with "Acute Myeologenous Leukemia" (a heavy form of Blood Cancer) in September of 2006 in Uzbekistan. Before that, she was constantly complaining about her health condition, but doctors were so reluctant to really look into what is actually happening to her that as a result, we found out that she was consuming medications that actually were worsening her illness, and there was even some point when she was in a critical condition!

Doctors say there is no way she could be cured in Uzbekistan (no experience, no opportunity...). They are saying that she needs to be taken abroad immidiately for professional surgery (Bone-Marrow Transplantation). We contacted many hospitals overseas, including USA, Germany, France, but the estimated costs of surgery there were extremely high ($350,000 and up...)!!! But, one clinic in Novosibirsk, Russia gave the least price among others ($85,000). We know this is still a lot of money and we don't own this much, but this is the only option to cure our sister!

I am currently in the US, going to college due to some scholarships received. But my family in Uzbekistan, (ordinary school teachers), are not able to financially cover any costs of treatment of my sister.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.
Current situation is, that our sister had undergone several Chemotherapy treatments and is still receiving it. (@ Institute of Hematology and Blood Transfusion). But, that is the only thing that is keeping her alive now - or in other words -extending her life.
Unfortunately, that doesn't help to cure her disease. The Only Thing That Can Cure Her Is An Immidiate SURGERY!!!


With this message, I want to ask you to help us PASS IT AROUND to everyone

(companies/organizations..influential people or anyone...) who you think

could help us find any funds for our sister's surgery! This matter is of

utmost urgency!!! The surgery needs to be done AS SOON AS POSSIBLE,

otherwise it's going to be too late...........!


Your support is greatly appreciated and please remember that even the smallest contribution will mean a lot to this young lady who we all believe should have at least the same life chances as any of us has.



***For Those Who Would Like To Help here's the link for the web site we created for Malika: www.mehr.uz (http://www.mehr.uz) There are several options
there for making donation including PayPal, Bank acct. details: http://www.mehr.uz/node/2 (http://www.mehr.uz/node/2)





USD account info

1) Beneficiary's name: Tulyaganov Sabirdjan Tulyaganovich
2) Beneficiary's Account No. 20206840699009169001
3) Beneficiary Bank: JSC "TURONBANK"
Uzbekistan, 700011 Tashkent,
Abay St., 4A МФО 00446
SWIFT: TUROUZ22
4) Correspondent Bank: JSC Vneshtorgbank, Russia
Account #: 30112840255550000061
SWIFT: VTBR RU MM


Also,


UZB account info..

1) Account No.: 29801000400000446108
2) МФО: 00446
3) Банк: АКБ "Турон"


SOFAR:

The donations have been made from around the world and from hundreds of individuals as well as groups of people and institutions/establishments. Also, one of the forum member's mother gave her blood for transfusion. The least people here in the forum and many others aware of this case have been doing, is giving their moral support and having hands on organizational issues. Funds raised as of 12/02/2007 total $14,639.92


As you see this is a great amount that we gathered due to outstanding attempts of our kind forum users. However, this is not enough for the surgery.... which is approx.$85,000. We need much more!!!

Please, please kind people help us save this young girl in the picture and get her back to normal life that she deserves!!!


Again, huge Thanks to each and every person involved in this action.

PS. Please DO let us know if you wish to verify the information through speaking to our family or even meeting with us. Our Phone # in UZB is: 246-38-48; Hope (Saida)'s phone number in the US is: 571-236-9178; email: saida_uzb@yahoo.com

[munisa]

Hi Hope,

very sorry for your sister.

sounds like you know english very well and there is only advice that I can give you. try to search on internet and find non profit organizations who help in this kind of situations. oh, especially if you are in states now you have a better chance than anyone else who would've have this issue while being in Uzb. I mean, you can search, find several organizations, institutions and visit them and have a personal touch. If necessary, you have to travel to their head offices. I don't know, don't really know how much its going to help, but at least i Hope...

[Arhimed]

hi,

My 19 year old sister was diagnosed with Blood Cancer, " Ostriy Miyloblast Leykoz" in September of this year in Uzbekistan. Until this time doctors were giving her treatment under incorrect diagnosis.
Doctors say there is no hope for recovery from this illness in Uzbekistan. They are recommending to take her to developed countries, where there is a way to cure from this disease. I am in the United States, in school right now. But my family, in Uzbekistan, is financially incapable of covering the costs of treatment or transportation abroad.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.

Please, if anyone knows who we can ask for help, or where we should go, please advise!

thanks,
Hope


Saida,


It was sorry to hear that.
Sure god will endow cure for her.....
Best way to do that is to ask Hospitals, they have Patient assistance programs. I heard that one guy brought his father from Uzb and had treatment for free of charge.

For free drugs:
http://www.freemedicineprogram.org/
http://www.freemedicinefoundation.com/
http://www.rxassist.org/
https://www.pparx.org/Intro.php

I encourage you to apply as early as possible for drugs you needed, processing takes up to 1 month.

You can check web as well for similar programs. You can get needed medicines for your sister.

I advice you to go tell to local newspaper or church to have it announced. in US people everyyear make donations from incomes to write off from tax. Also, rich muslim people do zakats every year.

Probably the best would be to ask help from muslim doctors working in hospitals nearby. They know people who are willing to donate. Usually, people do not give funds directly to patient, they pay bills from a doctor whom they go. For example, in mosque where I go a lot of muslim doctors come for friday prays. First make get to know any sisters coming to mosque. Usually mosques in US have two sections for both genders.

Patient assitance and free medicine programs requests your bank account balance and a list of property you got.

Believe me, these things really work. I got 2000$ assitanse once for Catscan of another sister. I would be happy if any of above stated helps you.

[Hopeful]

Check this out: http://www.leukemia.org/hm_lls
Hope this helps.

[Black]

Allohni O'zi shifo bersin.
I hope you understand Uzbek well.
Sizga maslahatim, ota onangizga ayting, Toshketndagi kattaroq machitlarni imomlariga uchrashib ko'rishsin, chunki ularga o'ziga to'q-boy musulmonlar uchrashib, zakot yoki ehsonlarini berib ketishadi, yoki kim muhtoj bo'lsa bizga ayting, biz o'zlarimiz yordam beramiz deydiganlari ham bor. Buni hech ham uyatli joyi yo'q. Chorsudagi Ho'ja Ahror Vali machit imomi Anvar qori akaga uchrashsalar, u kishini shunaqa tanishlari ko'p.
Tell to you parents to go to the biggest mosques of Tashkent. There are people in Tashkent who are ready to donate. They ask imams of the mosques to infrom them when there is somebody in need.

Afsuski meditsinamiz juda ham qoloq. Lukemiani davolash usullari hali ham yetib kelmagan.

[The Reaper]

I'm sorry for what your family is going through right now.
PM me contact information of your family. I'll see what I can do.

Mods: Can we sticky this thread?

TR

[Akhee-Abdullah]

hi,

My 19 year old sister was diagnosed with Blood Cancer, " Ostriy Miyloblast Leykoz" in September of this year in Uzbekistan. Until this time doctors were giving her treatment under incorrect diagnosis.
Doctors say there is no hope for recovery from this illness in Uzbekistan. They are recommending to take her to developed countries, where there is a way to cure from this disease. I am in the United States, in school right now. But my family, in Uzbekistan, is financially incapable of covering the costs of treatment or transportation abroad.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.

Please, if anyone knows who we can ask for help, or where we should go, please advise!

thanks,
Hope

Assalam alaikum,

Contact this website....I hope they will help you...http://www.conjoinedtwins.med.sa/english.php

The Kingdom of Saudi Arabia through its numerous humanitarian achievements, both nationally and internationally, has rightly deserved it’s status as the “Kingdom of Humanity”, as decreed by The Custodian of the Two Holy Mosques. This will be considered the national logo to be used by the government in relation to any humanitarian endeavor.

The Kingdom of Humanity reaches out across geographical and cultural barriers to aid those in need regardless of race, color or beliefs. These principles prevail under the leadership of The Custodian of the Two Holy Mosques, King Abdullah bin Abdulaziz Al Saud whose acts of benevolence clearly show his compassionate and generous nature. This is evident by his sponsorship of numerous conjoined twins separation cases from all over the world.

To date thirteen (13) sets of conjoined twins have been successfully separated in the Kingdom of Humanity, the most recent nine (9) at National Guard Health Affairs (NHGA), King Abdulaziz Medical City-Riyadh under the sponsorship of King Abdullah bin Abdulaziz Al Saud and the experienced Multidisciplinary Team headed by Dr. Abdullah Al Rabeeah, Consultant Pediatric Surgeon and Chief Executive Officer, NGHA.

The benevolence and fatherly nature of King Abdullah bin Abdulaziz Al Saud has touched the lives and hearts of these disadvantaged families by enabling their children to lead a more normal life.

I know your sister's case is not related to this Hospital, however, they do have the capability to help financially and medically, consider contacting them.

Another proof they would be willing to help...insha'Allah...

http://www.conjoinedtwins.med.sa/previous/Polish/english/index.html

Contact embassy of Saudia...at http://www.saudiembassy.net/

Contact #'s are http://www.saudiembassy.net/Embassy/Ministry.asp

[Akhee-Abdullah]

Also try contacting http://www.ngha.med.sa/Achievements/index.htm preferably directly with Abdullah Al Rabeeah

You can see his video http://www.conjoinedtwins.med.sa/images/polish_twins_repor_9e.wmv and the rest are here http://www.conjoinedtwins.med.sa/previous/Polish/english/report.html

[Dilfuza]

Hi dear,
Sorry for your sister,
In my experience and opinion, you search for Cancer Hospitals in Europe, search treatments, very important thing is to have all details of your sister condition. Ask from doctors who can help her. They can guide you with medicines and latest treatments. you can buy them and send to Uzbekistan.
It would help untill you will find more support for medical drugs against her disease.
For getting some support, maybe good way to write to Health Organisations in USA, or International organisations or Cancer research Foundations.
However to find specialised medical doctor who already treated such patients is very important. Some Hospitals in Europe can help as well. You can try in searching those contacts.

I know many people from Uzbekistan who were treated in European Hospitals, they are very fine. or your family should contact to Ministry of health of Uzbekistan, they have some activities to send sick children or people for treatment to European countries, there were group of disabled children adults who were in Germany for getting treatments.
I hope some of informations will help to your sister, one way which i have seen is to contact in discussion web site of people who suffers with cancer disease, just send message them, you will get a lot experiences and advises how they have been treated. Many my friends get help from such places for sick loved ones.

I pray for your family
Dilfuza

[Пушкарева]

Check out the American Cancer Society. They might provide with some funding. I hope. You may also refer to American families who've lost their family bc of the disease. You never know. What if you find people willing to do the charity.

[Magnolia]

Salam Aleikum Hope,

I'm very sorry to hear this about your sister.
Have you tried to contact St. Jude Hospital? I heard they provided care and assistance at their hospitals.
http://www.stjude.org/

[XXL]

Salom Aleykum

yahshimisz,

bollar kelilar har hil link berurmasdan, menimcha linklar etarli.


Hope Siz bitta account oching shunga hammamiz iloji boricha, finansoviy

imkoniyattan kelib chiqqan holatta albatta, materilaniy pomosh otkizamiz.


Hope Siz shuni oylab koring, schyott togrisida, ok, bilmasez, biladiganga

murojaat qiling,

[kingdom]

yaxshi fikr forumdi uzida yordam qulini chuzadiganla kup!toma toma kul bulur deb bekorga aytishmagan;) !Salom Aleykum

yahshimisz,

bollar kelilar har hil link berurmasdan, menimcha linklar etarli.


Hope Siz bitta account oching shunga hammamiz iloji boricha, finansoviy

imkoniyattan kelib chiqqan holatta albatta, materilaniy pomosh otkizamiz.


Hope Siz shuni oylab koring, schyott togrisida, ok, bilmasez, biladiganga

murojaat qiling,

[Royal]

hi,

My 19 year old sister was diagnosed with Blood Cancer, " Ostriy Miyloblast Leykoz" in September of this year in Uzbekistan. Until this time doctors were giving her treatment under incorrect diagnosis.
Doctors say there is no hope for recovery from this illness in Uzbekistan. They are recommending to take her to developed countries, where there is a way to cure from this disease. I am in the United States, in school right now. But my family, in Uzbekistan, is financially incapable of covering the costs of treatment or transportation abroad.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.

Please, if anyone knows who we can ask for help, or where we should go, please advise!

thanks,
Hope

Ozbekistondigi kontakt larni qoldirish keragiydi...

[Arhimed]

Buning uchun Hope webda o'zini va singlisini kimligi tog'risida ko'proq mamulot bersalar mavhumlikdan chiqsalar odamlar ko'proq javob berishadi deb oy'layman

[Arhimed]

Toshkentdigi kontakt larni qoldirish keragiydi...

bilishimcha Hope hozir USdalar singillari esa Toshkentda?

[zanjir]

I suggest you contact Holy name Hospital in Teaneck, NJ
very strong name of cancer desasters, I hope they will help you!

[The Reaper]

Here's an update:
I've been in regular contact with the girl's father, and the doctor who is overlooking her case. Currently, she's in the hospital, and doctors say her condition is a little better than before.
As far as medications go, everything is taken care of.

The problem is, she has a rare blood type: II (-). If you know someone who has the same blood type, and could donate, please PM me for details.
I'm also trying to work on transporting her to a hospital overseas through a charity organization. Unfortunately, it takes time, and hopefully we'll be able to get somewhere.

TR

[moroti]

just wanted to praise the guy, but don't know how this "thank" thing works
Here's an update:
I've been in regular contact with the girl's father, and the doctor who is overlooking her case. Currently, she's in the hospital, and doctors say her condition is a little better than before.
As far as medications go, everything is taken care of.

The problem is, she has a rare blood type: II (-). If you know someone who has the same blood type, and could donate, please PM me for details.
I'm also trying to work on transporting her to a hospital overseas through a charity organization. Unfortunately, it takes time, and hopefully we'll be able to get somewhere.

TR

[The Reaper]

Since we have a New Year coming soon, I'm thinking those of you who are in Tashkent could just drop by with some flowers and/or greeting cards. I'm sure it will make her happy and feel empowered, which is crucial while dealing with this disease. Moral support goes a long way.

PM me for details if you wish.

TR

[StU]

Here's an update:
I've been in regular contact with the girl's father, and the doctor who is overlooking her case. Currently, she's in the hospital, and doctors say her condition is a little better than before.
As far as medications go, everything is taken care of.

The problem is, she has a rare blood type: II (-). If you know someone who has the same blood type, and could donate, please PM me for details.
I'm also trying to work on transporting her to a hospital overseas through a charity organization. Unfortunately, it takes time, and hopefully we'll be able to get somewhere.

TR

hi Reaper, that is my blood type! :rolleyes:
Can you send me details pls. Be back home till 15 jan.

[The Reaper]

hi Reaper, that is my blood type! :rolleyes:
Can you send me details pls. Be back home till 15 jan.

I love this place! :D
PM on its way.

TR

[Royal]

Tabiblaga korsatishsa bomasmikin ??

Olloh umriniyu bahtini bersin..

lekin 1-2tasidan sorasam bu ancha ogir kasal deyishvotti...UZBda ancha muncha yahshi tabblar borku...

[The Reaper]

Tabiblaga korsatishsa bomasmikin ??

Olloh umriniyu bahtini bersin..

lekin 1-2tasidan sorasam bu ancha ogir kasal deyishvotti...UZBda ancha muncha yahshi tabblar borku...

Лучше не надо.
Во-первых она не транспортабельна. Во-вторых даже если привести табибов к ней, то врачи могут отказать потому что врачи не захотят брать на себя ответственность. Всё-таки болезнь очень тяжелая и всяческое нетрадиционное лечение может наоборот, усугубить её состояние.

TR

[StU]

I love this place! :D
PM on its way.

TR

Did u visit her? How soon does she need the blood?

[Royal]

hi,

My 19 year old sister was diagnosed with Blood Cancer, " Ostriy Miyloblast Leykoz" in September of this year in Uzbekistan. Until this time doctors were giving her treatment under incorrect diagnosis.
Doctors say there is no hope for recovery from this illness in Uzbekistan. They are recommending to take her to developed countries, where there is a way to cure from this disease. I am in the United States, in school right now. But my family, in Uzbekistan, is financially incapable of covering the costs of treatment or transportation abroad.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.

Please, if anyone knows who we can ask for help, or where we should go, please advise!

thanks,
Hope
Hope

Bu kasalikka davolani Evropa yani Germaniya va Frantsiya shikorlaridan qidirish kerak USda bundoq kasalga davo bosayam , "strahovaniya/sugurta" bolmasa yana qabul qilishi qiyin..

Agar singlizga qoyilgan diagnozni toliq tarjimasi bolsa bu yerga post qilin , balkim oshanda forum ahlini yordami ancha kopayar, inshaallah...

[Royal]

Hope, Siz bergan diagnozda noaniqlik borakan...

Острый миелобластный лейкоз

Острый миелобластный лейкоз (ОМЛ) называется также острым миелоидным лейкозом, острым миелоцитарным лейкозом и острым нелимфобластным лейкозом. ОМЛ развивается тогда, когда возникает дефект ДНК в незрелых клетках костного мозга. Точная причина ОМЛ неизвестна, но есть основания связывать с заболеванием некоторые факторы, относящиеся к загрязнению окружающей среды: воздействие радиации, отравление бензолом. ОМЛ проявляется в любом возрасте и является наиболее частой формой острого лейкоза у взрослых.

Симптомы/Диагностика

ОМЛ вызывает неконтролируемый рост «бластных», то есть незрелых, клеток крови и костного мозга, которые не могут нормально функционировать. Пациенты с ОМЛ имеют пониженное количество зрелых клеток крови всех типов: эритроцитов, тромбоцитов и лейкоцитов. В зависимости от типа клеток, на которые болезнь главным образом воздействует, ОМЛ делится на 7 основных видов. Точный диагноз ставится после изучения под микроскопом образцов крови и костного мозга. Выбор лечения при ОМЛ зависит от разновидности болезни и других факторов, таких как наличие и тип хромосомных нарушений.

Симптомы ОМЛ также зависят от разновидности болезни. У пациентов с пониженным содержание эритроцитов проявляются классические симптомы анемии: быстрая утомляемость, одышка, бледный цвет лица. У пациентов с низким содержанием тромбоцитов могут возникать длительные кровотечения и образовываться синяки и ссадины, которые заживают очень долго или не заживают вообще. Признаком низкого содержания лейкоцитов являются частые инфекции и боли в костях и суставах.

Лечение

Лекарственная терапия (химиотерапия)

Пациенты с ОМЛ почти всегда получают химиотерапию, которая начинается сразу после постановки диагноза. Цель такого лечения, называемого индукционной терапией, добиться ремиссии и восстановить нормальное кроветворение. Термин «ремиссия» происходит от латинского “remissio”, означающего «ослабление». Ремиссия острого лейкоза – это нивелирование патологических проявлений процесса под воздействием противолейкозной терапии индукции.

На стадии терапии индукции обычно используются следующие препараты: даунорубицин, доксорубицин и цитарабин, которые разрушительно воздействуют на репродуктивный цикл лейкозных клеток. Такая химиотерапия очень интенсивна и убивает в значительных количествах не только злокачественные, но и здоровые клетки крови, в результате чего пациенты, получающие индукционную терапию, могут страдать от различных побочных эффектов, таких как тошнота, слабость, повышенная чувствительность к инфекционным поражениям.

У большинства пациентов индукционная терапия восстанавливает нормальное кроветворение в течение нескольких недель, и изучение под микроскопом образцов крови и костного мозга не позволяет выявить лейкозных клеток. Когда такое происходит, говорят, что достигнута клинико-гематологическая ремиссия. В этот момент принимается решение о применении того или иного метода дальнейшего лечения. Это может быть продолжение химиотерапии с целью закрепления ремиссии (консолидация), насущность которой вызвана стремлением к более полному уничтожению лейкозных клеток и усиления сдерживающего влияния на «дремлющую» лейкозную клеточную субпопуляцию. Другой метод лечения – проведение аутологичной или аллогенной трансплантации костного мозга.

Трансплантация гемопоэтических стволовых клеток

До недавнего времени трансплантация гемопоэтических стволовых клеток (ТГСК) упоминалась в контексте трансплантации костного мозга (ТКМ), поскольку костный мозг был единственным источником гемопоэтических стволовых клеток, используемых при лечении пациентов. Стволовые клетки это невызревшие клетки - предшественницы кроветворения, впоследствии развивающиеся в три типа кровяных клеток: лейкоциты, эритроциты и тромбоциты. В настоящее время стволовые клетки получают из костного мозга, пуповинной крови или из периферической крови донора. Какой бы источник не использовался, стволовые клетки вводятся в организм пациента после проведения высокодозной химиотерапии или лучевой терапии, призванной полностью уничтожить лейкозные клетки больного. Предтрансплантационная химиотерапия уничтожает также иммунную систему пациента, которую вводимые клетки должны восстановить.

Существует две вида ТГСК: аутологичная и аллогенная. Первый включает в себя предварительный этап забор гемопоэтических стволовых клеток пациента, хранение их в замороженном виде, специальную обработку и вливание пациенту после проведения высокодозной химио- или лучевой терапии. Обычно стволовые клетки забираются в период полной ремиссии (состояние характеризуется полной нормализацией клинической симптоматики длительностью не менее 1 месяца, в миелограмме присутствует не более 5% бластных клеток и не более 30% лимфоцитов). При этом можно рассчитывать на восстановление нормального кроветворения. Недостаток аутологичной трансплантации заключается в более высокой вероятности рецидива болезни, по сравнению с аллогенной трансплантацией. Однако пациенты, прошедшие аутотрансплантацию, свободны от реакции отторжения «трансплантат против хозяина», которая является очень серьезным возможным осложнением после проведения аллогенной трансплантации (см. ниже).

Аллогенная трансплантация требует наличия родственного или неродственного донора, гистосовместимого с пациентом по HLA-системе. В качестве родственного донора обычно выступает родной брат или сестра, но донор может быть найден и среди родителей или других кровных родственников (дяди, тети, двоюродные братья). В любом случае лечащий врач начинает поиск совместимого донора с ближайших родственников и часто проводит типирование и более дальних родственников пациента. Если подходящего донора не найдено, врач проводит поиск в базе данных СПбГМУ и в Фонде Стефана Морша (Германия), соучредителе нашей донорской базы, а далее – в Международном донорском регистре. Независимо от того, родственный или неродственный донор найден, процедура трансплантации одна и та же: производится забор гемопоэтических стволовых клеток донора, которые затем внутривенно вводятся пациенту. В отличие от аутологичной трансплантации, донорские клетки замораживаются редко, поскольку их вливание происходит, как правило, в течение 24 часов после забора.

У некоторых пациентов после трансплантации развивается потенциально смертельно-опасная реакция отторжения «трансплантат против хозяина», когда новая иммунная система пациента, воссозданная донорскими клетками, атакует клетки организма реципиента. Трансплантологи различают два типа этой реакции: острую, когда симптомы проявляются вскоре после трансплантации, и хроническую, когда симптомы проявляются слабо и могут возникнуть через месяцы или годы после трансплантации. К счастью, существуют лекарства, способные успешно бороться с этим серьезным осложнением.

Важно подчеркнуть, что решение о проведении трансплантации может быть принято только самим пациентом и его близкими людьми.


При оформлении данной страницы использованы материалы, опубликованные на web-сайте Национальной Программы Донорства Костного Мозга США.

http://advita.org/diseases_aml.php va yana koproq info: http://www.google.com/search?hl=ru&rls=WZPA,WZPA:2006-50,WZPA:en&sa=X&oi=spell&resnum=0&ct=result&cd=1&q=%D0%9E%D1%81%D1%82%D1%80%D1%8B%D0%B9+%D0%9C%D0%B 8%D0%B5%D0%BB%D0%BE%D0%B1%D0%BB%D0%B0%D1%81%D1%82% D0%BD%D1%8B%D0%B9+%D0%9B%D0%B5%D0%B9%D0%BA%D0%BE%D 0%B7&spell=1

Yana Dunyo boyicha: http;//www.marrow.orq http://www.worldmarrow.org/

[Royal]

togri diagnoz shu : Acute myelogenous leukemia

http://www.marrow.org/PATIENT/Undrstnd_Disease_Treat/Lrn_about_Disease/AML/index.html

[Royal]

Adult Acute Myeloid Leukemia
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--------------------------------------------------------------------------------
General Information
Classification
Treatment Option Overview
Untreated Adult Acute Myeloid Leukemia
Adult Acute Myeloid Leukemia in Remission
Recurrent Adult Acute Myeloid Leukemia
Changes to This Summary (09/19/2006)
More Information
--------------------------------------------------------------------------------

General Information
Note: Estimated new cases and deaths from acute myeloid leukemia (AML) in the United States in 2006: [1]

New cases: 11,930.
Deaths: 9,040.
Advances in the treatment of AML (also called acute nonlymphocytic leukemia or ANLL) have resulted in substantially improved complete remission rates. [2] Treatment should be sufficiently aggressive to achieve complete remission because partial remission offers no substantial survival benefit. Approximately 60% to 70% of adults with AML can be expected to attain complete remission status following appropriate induction therapy. More than 15% of adults with AML (about 25% of those who attain complete remission) can be expected to survive 3 or more years and may be cured. Remission rates in adult AML are inversely related to age, with an expected remission rate of >65% for those younger than 60 years. Data suggest that once attained, duration of remission may be shorter in older patients. Increased morbidity and mortality during induction appear to be directly related to age. Other adverse prognostic factors include central nervous system involvement with leukemia, systemic infection at diagnosis, elevated white blood cell count (>100,000/mm3), treatment-induced AML, and history of myelodysplastic syndrome. Leukemias that express the progenitor cell antigen CD34 and/or the P-glycoprotein (MDR1 gene product) have an inferior outcome. [3] [4] [5] AML associated with an internal tandem duplication of the FLT3 gene (FLT3/ITD mutation) has an inferior outcome that is attributed to a higher relapse rate. [6] [7]

Cytogenetic analysis provides some of the strongest prognostic information available, predicting outcome of both remission induction and postremission therapy. [8] Cytogenetic abnormalities that indicate a good prognosis include t(8;21), inv(16), and t(15;17). Normal cytogenetics portend average-risk AML. Patients with AML that is characterized by deletions of the long arms or monosomies of chromosomes 5 or 7; by translocations or inversions of chromosome 3, t(6;9), t(9;22); or by abnormalities of chromosome 11q23 have particularly poor prognoses with chemotherapy. These cytogenetic subgroups predict clinical outcome in elderly patients with AML as well as in younger patients. [9] The fusion genes formed in t(8;21) and inv(16) can be detected by reverse transcriptase–polymerase chain reaction (RT–PCR), which will indicate the presence of these genetic alterations in some patients in whom standard cytogenetics was technically inadequate. RT–PCR does not appear to identify significant numbers of patients with good risk fusion genes who have normal cytogenetics. [10]

The classification of AML has been revised by a group of pathologists and clinicians under the auspices of the World Health Organization (WHO). [11] While elements of the French-American-British classification have been retained (i.e., morphology, immunophenotype, cytogenetics and clinical features), the WHO classification incorporates more recent discoveries regarding the genetics and clinical features of AML in an attempt to define entities that are biologically homogeneous and that have prognostic and therapeutic relevance. [11] [12] [13] Each criterion has prognostic and treatment implications but, for practical purposes, antileukemic therapy is similar for all subtypes.

A long-term follow-up of 30 patients who had AML that was in remission for at least 10 years has demonstrated a 13% incidence of secondary malignancies. Of 31 long-term female survivors of AML or acute lymphoblastic leukemia younger than 40 years, 26 resumed normal menstruation following completion of therapy. Among 36 live offspring of survivors, 2 congenital problems occurred. [14]

The differentiation of AML from acute lymphocytic leukemia has important therapeutic implications. Histochemical stains and cell surface antigen determinations aid in discrimination.

http://www.meb.uni-bonn.de/cancer.gov/CDR0000062869.html
http://www.cancer.gov/cancertopics/pdq/treatment/AML/Patient

[Royal]

Treatment Option Overview
Note: Some citations in the text of this section are followed by a level of evidence. The PDQ editorial boards use a formal ranking system to help the reader judge the strength of evidence linked to the reported results of a therapeutic strategy. (Refer to the PDQ summary on Levels of Evidence for more information.)

Successful treatment of acute myeloid leukemia (AML) requires the control of bone marrow and systemic disease and specific treatment of central nervous system (CNS) disease, if present. The cornerstone of this strategy includes systemically administered combination chemotherapy. Because only 5% of patients with AML develop CNS disease, prophylactic treatment is not indicated. [1] [2] [3]

Treatment is divided into 2 phases: induction (to attain remission) and postremission (to maintain remission). Maintenance therapy for AML was previously administered for several years but is not included in most current treatment clinical trials in the United States (see the Adult AML in remission section of this summary). Other studies have used more intensive consolidation therapy administered for a shorter duration of time after which treatment is discontinued. [4] Consolidation therapy appears to be effective when given either immediately after remission is achieved [4] or when delayed for 9 months. [3]

Since myelosuppression is an anticipated consequence of both the leukemia and its treatment with chemotherapy, patients must be closely monitored during therapy. Facilities must be available for hematologic support with multiple blood fractions including platelet transfusions, as well as for the treatment of related infectious complications. [5] Randomized trials have shown similar outcomes for patients who received prophylactic platelet transfusions at a level of 10,000/mm3 rather than 20,000/mm3. [6] The incidence of platelet alloimmunization was similar among groups randomly assigned to receive pooled platelet concentrates from random donors; filtered, pooled platelet concentrates from random donors; ultraviolet B-irradiated, pooled platelet concentrates from random donors; or filtered platelets obtained by apheresis from single random donors. [7] Colony-stimulating factors, e.g., granulocyte colony–stimulating factor (G-CSF) and granulocyte-macrophage colony–stimulating factor (GM-CSF), have been studied in an effort to shorten the period of granulocytopenia associated with leukemia treatment. [8] If used, these agents are administered after completion of induction therapy. GM-CSF was shown to improve survival in a randomized trial of AML in patients aged 55 to 70 years (median survival was 10.6 months vs. 4.8 months). In this trial, patients were randomized to receive GM-CSF or placebo following demonstration of leukemic clearance of the bone marrow; [9] however, GM-CSF did not show benefit in a separate similar randomized trial in patients aged 60 years and older. [10] In the latter study, clearance of the marrow was not required before initiating cytokine therapy. In a randomized trial of G-CSF given following induction therapy to patients older than 65 years, complete response was higher in patients who received G-CSF, due to a decreased incidence of primary leukemic resistance. Growth factor administration did not impact on mortality or on survival. [11]

The administration of GM-CSF or other myeloid growth factors before and during induction therapy, to augment the effects of cytotoxic therapy through the recruitment of leukemic blasts into cell cycle (growth factor priming), has been an area of active clinical research. Evidence from randomized studies of GM-CSF priming have come to opposite conclusions. A randomized study of GM-CSF priming during conventional induction and consolidation therapy showed no difference in outcomes between patients who received GM-CSF and those who did not receive growth factor priming. [12] [13][Level of evidence: 1iiA] In contrast, a similar randomized placebo-controlled study of GM-CSF priming in patients with AML aged 55 to 75 years showed improved disease-free survival in the group receiving GM-CSF (median disease-free survival for patients who achieved complete remission was 23 months vs. 11 months; 2-year disease-free survival was 48% vs. 21%), with a trend towards improvement in overall survival (2-year survival was 39% vs. 27%, P = .082) for patients aged 55 to 64 years. [14][Level of evidence: 1iiDi]

The designations in PDQ that treatments are “standard” or “under clinical evaluation” are not to be used as a basis for reimbursement determinations.

http://www.meb.uni-bonn.de/cancer.gov/CDR0000062869.html

[dauphin]

hi,

My 19 year old sister was diagnosed with Blood Cancer, " Ostriy Miyloblast Leykoz" in September of this year in Uzbekistan. Until this time doctors were giving her treatment under incorrect diagnosis.
Doctors say there is no hope for recovery from this illness in Uzbekistan. They are recommending to take her to developed countries, where there is a way to cure from this disease. I am in the United States, in school right now. But my family, in Uzbekistan, is financially incapable of covering the costs of treatment or transportation abroad.
This matter is of utmost urgency. Every day passed without adequate medical treatment reduces chances of my sister for survival.

Please, if anyone knows who we can ask for help, or where we should go, please advise!

thanks,
Hope

Her post is confusing, I beleived that myoblasts are muscle cells. Here she is talking about blood cancer. And After that the Hope is lost.she is gone. she is not answering any posts. And this post only one that she ever made. so...

[Royal]

Her post is confusing, I beleived that myoblasts are muscle cells. Here she is talking about blood cancer. And After that the Hope is lost.she is gone. she is not answering any posts. And this post only one that she ever made. so...

bu suyakdan yani orqa umurtqa suyaklaridan chiqadiganlar qonga yahshi qoshilmasdan rivojlanmasligi

[Hope]

Thank you Akhee-Abdullah for info and links you provided to seek help. I have looked through the website and dropped an email message to them. I will also try contacting via phone. I hope they help.


Thank you!

-Hope

[Hope]

Dear Magnolia,

Sorry for not being able to respond to your message sooner. Yes, I was referred to St.Jude's Hospital. People say it's a very powerful hospital that even gives treatment free of charge to those who can not afford to pay. But, unfortunately, when i contacted them, I was told that only children under age 18 are eligible to apply for medical treatment program in their hospital. They referred me to some other meidcal centers that have programs to cure Leukemia. I am trying to contact those right now. I hope these will be more helpful.

Thank you so much for the link. I just wish they did not have such restrictions.
I hope and believe God will help us cure her from this disease!

Thank you.

[Hope]

Salom Aleykum

yahshimisz,

bollar kelilar har hil link berurmasdan, menimcha linklar etarli.


Hope Siz bitta account oching shunga hammamiz iloji boricha, finansoviy

imkoniyattan kelib chiqqan holatta albatta, materilaniy pomosh otkizamiz.


Hope Siz shuni oylab koring, schyott togrisida, ok, bilmasez, biladiganga

murojaat qiling,


Salom XXL,

rahmat shchot haqidagi taklifingiz uchun. Manimchayam, juda katta yordam bolardi. Faqat schotni qanday ochishni ozim bilmiman. Agar ichilada birontasi bu narsani qanday amalga oshirishni bilsa, iltimos yordam berila!

-Hope

[XXL]

Salom XXL,

rahmat shchot haqidagi taklifingiz uchun. Manimchayam, juda katta yordam bolardi. Faqat schotni qanday ochishni ozim bilmiman. Agar ichilada birontasi bu narsani qanday amalga oshirishni bilsa, iltimos yordam berila!

-Hope
Salom aleykum

Hope qalesiz


Ha hop, unda akam Amiri Turkistonga iltimos qilamiz, PM lashib birga hal qilaslar.


Qolganini asta sekin hamma qo'lidan kelgancha otkizamiz

Havotirlanmeng, Hudo Hohlasa, hammamiz birgalikda harakat qilamiz. ;)

[Hope]

Her post is confusing, I beleived that myoblasts are muscle cells. Here she is talking about blood cancer. And After that the Hope is lost.she is gone. she is not answering any posts. And this post only one that she ever made. so...

Dear dauphin,

I am sorry if my post confused you. All I wanted to say is that my sister back in Uzbekistan, has recently been diagnosed with Blood Cancer and we are seeking for help to cure her. In russian, it is "Ostriy Meyloblastniy Leykoz." In English it is called Acute Myelogenuous Leukemia, which is also called Acute Myeloblastic Leukemia, Acute Granulocytic Leukemia, and Acute nonlymphocytic leukemia.
Very sorry, I could not respond back to your posts for a while. I had some problems with internet access.

[Hope]

Since we have a New Year coming soon, I'm thinking those of you who are in Tashkent could just drop by with some flowers and/or greeting cards. I'm sure it will make her happy and feel empowered, which is crucial while dealing with this disease. Moral support goes a long way.

PM me for details if you wish.

TR

Dear The Reaper,

Thank you guys so much for support and attempt to help my sister. It is so kind of you all. But, my sister is going through vary difficult time. As you might be aware, most cancer patients suffer from hair loss and other things. My sister takes things close to her heart by nature. and in this kind of condition, she doesn't feel comfortable to be seen in public. We even had to return the relatives who came to visit her in the hospital. I hope you guys understand...

But, I really really appreciate your kindness. I personally, told my sister that I discovered this Uzbek Forum and so many people there are trying to help all the ways they can. She was so empowered.

[The Reaper]

Dear The Reaper,

Thank you guys so much for support and attempt to help my sister. It is so kind of you all. But, my sister is going through vary difficult time. As you might be aware, most cancer patients suffer from hair loss and other things. My sister takes things close to her heart by nature. and in this kind of condition, she doesn't feel comfortable to be seen in public. We even had to return the relatives who came to visit her in the hospital. I hope you guys understand...

But, I really really appreciate your kindness. I personally, told my sister that I discovered this Uzbek Forum and so many people there are trying to help all the ways they can. She was so empowered.

I hear you loud and clear.

Next time you speak to her, on behalf of all of us here, please pass her our warmest regards and holiday wishes!

Let us know if there's anything else we can do.

TR

[The Reaper]

Salom aleykum

Hope qalesiz


Ha hop, unda akam Amiri Turkistonga iltimos qilamiz, PM lashib birga hal qilaslar.


Qolganini asta sekin hamma qo'lidan kelgancha otkizamiz

Havotirlanmeng, Hudo Hohlasa, hammamiz birgalikda harakat qilamiz. ;)

What we could do, is have her parents open a USD account in one of our local banks, then people could wire-transfer money to their account.

Lemme know if there's something I can do to help.

TR

[Desperado]

Please let us know details of your bank account when you will have one. We will keep checking this thread.

I am proud of every forum.uz user who is trying to do something in this case.

[StU]

Dear Hope,

my mom donated today blood for you sister. They didn't take mine. Pls let me know if she's getting little better.

[The Reaper]

Dear Hope,

my mom donated today blood for you sister. They didn't take mine. Pls let me know if she's getting little better.

OUTSTANDING!!
Huge thank-you goes out to both you and your mom!! :cool:

TR

[Пушкарева]

Studentin + mama + TR --> avliyolar. Respect.

[Hope]

Dear Hope,

my mom donated today blood for you sister. They didn't take mine. Pls let me know if she's getting little better.

Dear Studentin,

Thank you for doing this for my sister. You can not imgaine how grateful I am to you and your mom. God bless you!

[Amiri Turkiston]

Dear HOPE

just tell to your MOM to contact me
I'll open to her a US Dollar Account at TURON BANK ....
We just need her passport...that's all

For sure SHE WON'T HAVE ANY PROBLEM WITH getting money from it

just check your PM

[The Reaper]

Dear HOPE

just tell to your MOM to contact me
I'll open to her a US Dollar Account at TURON BANK ....
We just need her passport...that's all

For sure SHE WON'T HAVE ANY PROBLEM WITH getting money from it

just check your PM

Excellent!
Keep us updated please.

TR

P.S. Its moments like these which make this whole message board worth it.

[NozChik]

Studentin Well done sister Say THANKS to ur Ayajon. RESPECT

Well done Guys, The Reaper u just great Bro


Dear HOPE

just tell to your MOM to contact me
I'll open to her a US Dollar Account at TURON BANK ....
We just need her passport...that's all

For sure SHE WON'T HAVE ANY PROBLEM WITH getting money from it

just check your PM

AT Can u PM me as well her Bank account number, all i can do for now

[Hamid]

I am not sure, but I heard that this kind of operations/transplants also need a quite perfectly matched donor.
I will try to find out in bristol, I know a guy who had translant a long time ago, he is from turkey, and that time, they had a big campaign back in turkey to raise money, so if anybody could help to organise something like this back in UZ, that would be great, anything will help.
Please pm me the bank details too, so we could contribute something with our family.

hh

[Hope]

Dear HOPE

just tell to your MOM to contact me
I'll open to her a US Dollar Account at TURON BANK ....
We just need her passport...that's all

For sure SHE WON'T HAVE ANY PROBLEM WITH getting money from it

just check your PM

Dear Amiri Turkiston,

I will contact my parents and give them the contacts you left as soon as possible. They will contact you. Thank you very much Amiri Turkiston....

[Hope]

I am not sure, but I heard that this kind of operations/transplants also need a quite perfectly matched donor.
I will try to find out in bristol, I know a guy who had translant a long time ago, he is from turkey, and that time, they had a big campaign back in turkey to raise money, so if anybody could help to organise something like this back in UZ, that would be great, anything will help.
Please pm me the bank details too, so we could contribute something with our family.

hh

Dear Hamid,

Can you please give more info abt. the case of that Turkish guy. I think you are talking about Bone Marrow Transplantation. Did they find a donor? I was also told that it is one way to cure Acute Leukemia. Only, in order to do so, there is no other way, except finding donor.

[Hope]

I hear you loud and clear.

Next time you speak to her, on behalf of all of us here, please pass her our warmest regards and holiday wishes!

Let us know if there's anything else we can do.

TR


Thank you The Reaper, I will definately pass your regards and wishes to her. I am sure she would be very happy.
I will try to keep you updated.

[Пушкарева]

Hope, you should definitley treat your sis in the US. Here, people live with/after the disease.

[Hamid]

Dear Hamid,

Can you please give more info abt. the case of that Turkish guy. I think you are talking about Bone Marrow Transplantation. Did they find a donor? I was also told that it is one way to cure Acute Leukemia. Only, in order to do so, there is no other way, except finding donor.
Yes, he had Bone Marrow transplant, I don't know him well, but know people who know him very well. Will try to get info for tomorrow, inshaAlloh, and will seek advice from the hospital he had the transplant too.

hh

[StU]

Dear Studentin,

Thank you for doing this for my sister. You can not imgaine how grateful I am to you and your mom. God bless you!

how is she now? Doktor skazala chto ona v tyajelom sostoyaniyi :( .
We'll pray for her...

[Magnolia]

Hope-Im sorry to hear that St.Jude has age restrictions :(...How is your sister doing?

Studentin and your mom,The Reaper-BIG RESPECT for you guys ;)

Amiri Turkiston-please PM me the details as well :)

[StU]

Your dad just called.
On skazal chto u nee vchera temperatura bila pod 40. Doljni bili sdelat srochno perelivaniye. Ey polegchalo?

[Hope]

Hope, you should definitley treat your sis in the US. Here, people live with/after the disease.

Dear NeZaBudkA,

That is what I have been trying to do, but it looks like it is not very easy to do so. All the places say they want to see her phisically and examine before they decide they are gonna give medical treatment, and you know she is not transportable right now.

[Hope]

Your dad just called.
On skazal chto u nee vchera temperatura bila pod 40. Doljni bili sdelat srochno perelivaniye. Ey polegchalo?

Dear Studentin and others,

Happy Eid, and Happy New Year to everyone! Pust' Bog dast krepkogo zdorov'ya i shastya vsem vam!

When I called home yesterday, they told me that she has fever but she is feeling OK, unless if things changed after that. I hope she is good. I can not wait to call and find out what is going on.... It's 4:30 pm in US - 2:30 am in Uzb. I pray everything is good.

My family asked to pass a big THANK YOU to you - Studentin, to your mom, to The Reaper, and everyone else here in Forum. It's such a big blessing for us that you guys are helping so much.

My dad said my sister is supposed to be having blood transfusion now, however, the doctors say more blood is needed. We are looking for a donor.

Guys, if anyone could donate blood or knows somebody who could donate blood, please let us know. My sister's blood type is -(II).

Our contact # in Uzb.: 396-38-48.


Thank you guys for all the help and useful advices! Hope God gives cure to my sister.

-Hope

[Akademik]

Please let us know the details of your bank account as soon as you get one.

May Allah bless all of you who are trying to help in this serious case

[Arhimed]

Dear HOPE

just tell to your MOM to contact me
I'll open to her a US Dollar Account at TURON BANK ....
We just need her passport...that's all

For sure SHE WON'T HAVE ANY PROBLEM WITH getting money from it

just check your PM

but it takes long time to transfer the money, maybe you could try ABN amro?

[Arhimed]

Hope

you can seek for blood donors but you can buy it as well. Just ask doctors treating your sister, usually they have list of people selling blood.

Arhimed

[The Reaper]

UPDATE:
Here's USD account info for those who would like to help:

1) Beneficiary's name: Tulyaganov Sabirdjan Tulyaganovich

2) Beneficiary's Account No. 20206840699009169001

3) Beneficiary Bank: JSC "TURONBANK"
Uzbekistan, 700011 Tashkent,
Abay St., 4A МФО 00446
SWIFT: TUROUZ22

4) Correspondent Bank: JSC Vneshtorgbank, Russia
Account #: 30112840255550000061
SWIFT: VTBR RU MM

(Note there are 3 correspondent banks listed, but I guess one should be enough. If not, I'll post all of them)

This is the account # for wire-transfers in Soums: 20206000199010909001

Your support is greatly appreciated. Even a smallest contribution will mean a lot.

For any additional info, you can either contact me, or Amiri Turkiston (he's the one who helped with opening the account).

TR

[Royal]

Hope

Ozizni USdagi bank accountizniyam qoysayiz hamma nomerlari bilan ungayam USdagilar ataganlarini jonatisharmidi...

Chunki UZBga jonatsalar jonatganlaridan yolda yol harajati uchun ancha ushlab qolishadi...

[Amiri Turkiston]

Hope

Ozizni USdagi bank accountizniyam qoysayiz hamma nomerlari bilan ungayam USdagilar ataganlarini jonatisharmidi...

Chunki UZBga jonatsalar jonatganlaridan yolda yol harajati uchun ancha ushlab qolishadi...

Bobo ana tepada Mr. Reaper qo'yibdilarku USD dagi accountni
ushaqqa bemalol yubora verin

hech qanday muammo bulmaydi...yuborishda ham olishda ham

[Hopeful]

Bobo ana tepada Mr. Reaper qo'yibdilarku USD dagi accountni
ushaqqa bemalol yubora verin

hech qanday muammo bulmaydi...yuborishda ham olishda ham

Menimcha, Royal pulni wire transfer qilish bilan bog'liq harajatlat haqida aytayapti. USAdagi banklar international wire transfer harajatlari uchun 30-50 dollar atrofida olishadi. Agar shu account USAdagi biror bir bankda ham ochilganda pul otkazish bilan bog'iq harajatlar tejalgan bo'lardi. USAdagilar beradigan pulni bitta accountda jamlab keyin bitta wire transfer qilinsa ancha mablag' tejalardi.

[Amiri Turkiston]

Menimcha, Royal pulni wire transfer qilish bilan bog'liq harajatlat haqida aytayapti. USAdagi banklar international wire transfer harajatlari uchun 30-50 dollar atrofida olishadi. Agar shu account USAdagi biror bir bankda ham ochilganda pul otkazish bilan bog'iq harajatlar tejalgan bo'lardi. USAdagilar beradigan pulni bitta accountda jamlab keyin bitta wire transfer qilinsa ancha mablag' tejalardi.

ehh ha

endi tushundim

Hope USda ham bitta accountochsalar manimcha nur ustiga a'lo nur buladi unda

[Royal]

New use of cord blood to treat childhood leukemia
study Fri Jan 5, 12:47 PM ET

CHICAGO (AFP) - A three-year-old leukemia victim was given a life-saving infusion of her own cord blood, marking the first time a child with this disease served as their own blood donor, American doctors said.

The little girl is now a thriving six-year-old six -- a tribute, say her doctors, to the pioneering transplant that helped her recover from radical chemotherapy.

They also commended the foresight of her parents who decided to save some of her umbilical cord on the off chance it might be needed later.

"There's a good chance the procedure saved her life. She is in remission and has an excellent chance of being cured," said Ammar Hayani, the pediatric oncologist who treated the youngster at Advocate Hope Children's Hospital in Oak Lawn, Ill.

In 2003, the little girl was diagnosed with the most common childhood cancer, acute lymphoblastic leukemia, and began long-term chemotherapy treatment.

She quickly went into remission, but 10 months later the cancer was back, and this time it had spread to her spine, a worrying development that signaled the leukemia was a particularly aggressive kind that would probably not respond well to treatment, Hayani said.

Her doctors responded with a more aggressive chemotherapy protocol and full-body radiation, and then looked around for ways to replace the blood system they had wiped out.

Ordinarily they would have had to choose between a blood or bone marrow transplant from a family member or unrelated donor, but in this case, the family members were not a match.

And rather than use material from an unrelated donor, with the corresponding risk of life-long complications, they opted to take the controversial and risky step of transplanting the girl's own cord blood, which had been frozen and stored at a private blood bank several years following her birth in 1999.

"We were in unchartered territory," said Hayani. "We couldn't predict with any certainty whether the operation would be successful. We had no concrete data, but the parents felt very comfortable with it, so we went ahead."

The procedure was not without risk, because even though the cord blood was screened to ensure it did not contain any cancerous cells, the screening techniques are not 100 percent accurate, Hayani explained.

Still, the child's parents weighed the risks and gambled that their daughter's own stem cells, contained in her cord blood, would benefit her more than stem cells harvested from the bone marrow or blood of strangers.

The results so far suggest they made the right call, said Hayani who reported on the girl's case in a paper that appears in the January issue of the journal Pediatrics.

"It's hard to argue with success. Relapse seems very unlikely at this point, and she has an excellent quality of life, much better than if she had taken stem cells from a donor."
http://news.yahoo.com/s/afp/20070105/hl_afp/ushealthcancer_070105174724

[Royal]

Menimcha, Royal pulni wire transfer qilish bilan bog'liq harajatlat haqida aytayapti. USAdagi banklar international wire transfer harajatlari uchun 30-50 dollar atrofida olishadi. Agar shu account USAdagi biror bir bankda ham ochilganda pul otkazish bilan bog'iq harajatlar tejalgan bo'lardi. USAdagilar beradigan pulni bitta accountda jamlab keyin bitta wire transfer qilinsa ancha mablag' tejalardi.

USAdan wire tranfer qilinganda bir harajat boladi va UZBdayam BANKlar bir harajatmas - % olishadi, bunda boladigan harajat ancha-muncha boladi...unisini hech kim bilan gaplaship bomiydi...bu standart.

[-Resident-]

ehh ha

endi tushundim

Hope USda ham bitta accountochsalar manimcha nur ustiga a'lo nur buladi unda
Menimcha eng yahshi usuli PAY Pal account ochish bo`lsa kerak pul o`tkizadiganlarga tekin hech qanday charge yo`q qabul qilivchiga esa 500$ gacha tekin undan keyin juda ham oz miqdorda % to`laydi!

[Hope]

UPDATE:
Here's USD account info for those who would like to help:

1) Beneficiary's name: Tulyaganov Sabirdjan Tulyaganovich

2) Beneficiary's Account No. 20206840699009169001

3) Beneficiary Bank: JSC "TURONBANK"
Uzbekistan, 700011 Tashkent,
Abay St., 4A МФО 00446
SWIFT: TUROUZ22

4) Correspondent Bank: JSC Vneshtorgbank, Russia
Account #: 30112840255550000061
SWIFT: VTBR RU MM

(Note there are 3 correspondent banks listed, but I guess one should be enough. If not, I'll post all of them)

This is the account # for wire-transfers in Soums: 20206000199010909001

Your support is greatly appreciated. Even a smallest contribution will mean a lot.

For any additional info, you can either contact me, or Amiri Turkiston (he's the one who helped with opening the account).

TR


Thank you The Reaper, and Amiri Turkiston for helping to open account and everything else!
I also want to thank everyone who initiated, supported this idea, and those who are willing to help financially for my sister's cure. Me and my family greatly appreciate your help! God bless you all!

If it is rather comfortable for some to work with US accounts, I will open an account here in the States, and will try to post account details as soon as I get it open!

Thank you all so much!

[The Reaper]

Thank you The Reaper, and Amiri Turkiston for helping to open account and everything else!
I also want to thank everyone who initiated, supported this idea, and those who are willing to help financially for my sister's cure. Me and my family greatly appreciate your help! God bless you all!

If it is rather comfortable for some to work with US accounts, I will open an account here in the States, and will try to post account details as soon as I get it open!

Thank you all so much!

CAUTION:

Considering widespread cases of ID theft and fraud, I think it would be much better not to post your account info out in the open.
You could either PM account details to those who need it, or we could post those in the "Elite Section" of this board.

TR

[Royal]

CAUTION:

Considering widespread cases of ID theft and fraud, I think it would be much better not to post your account info out in the open.
You could either PM account details to those who need it, or we could post those in the "Elite Section" of this board.

TR
Hayojanlanmayla, account bosa uni hisobiniyu hafsizligini togrilash hech qiyin joyi yo...

[The Reaper]

UPDATE:

Today I've received a fax from a clinic in Germany! They are ready to accept her as a patient!! :cool:
From what I read, the clinic is top notch and provides modern tools for dealing with this disease, as well as follow-up diagnostics, all individually crafted for each patient.
The clinic is called Oncology and Hematology Clinic of University of Baden-Wurttemberg.

Now, I'm waiting for some more paperwork from them.

Let's keep our fingers crossed, and hope for the best.

TR

P.S. What a great way to start a week. :D

[Royal]

Reaper

Bu klinikani qaysi shahardaykan ? yani Germaniyani qatidaykan ?

Va oilalaridan nechchi kishi borishligi kerak boladi, qiz bilan onalari borishlari kerak bolsa unda qancha harajatlari bolishi mumkin ?

1. Samalyot ?
2. Frankfurtdankeyin yana qatga qanchada borishlari kerak ?
3. Borgandan keyin turish/yashash ?

va hakazolar ...

[Maroon]

I have got News which I got currently!!!

Fondovaya birja Uzbekistana uje perechislila 2.000000 So'm segodne. :nod:

Good for the start.

[Prince]

I have got News which I got currently!!!

Fondovaya birja Uzbekistana uje perechislila 2.000000 So'm segodne. :nod:

Good for the start.

is 2M enough?

[Maroon]

is 2M enough?

No it is not enough. But it is better than nothing. We are working on it. Hudo Hohlasa, vsyo budet normalno. :)

[Hamid]

I am not much able to help with finances at the moment, but can do one thing, transfer funds in UK to UZb without any trasnfer charge:
There is a girl who studies medicine here in bristol, from tashkent, her parents pay her tuition fees and living expenses. So her parents need to trasnfer money(around 7000USD) every 3 months or so to the UK. In her case people in the Uk credit her account with pounds, and their familes are given USD in tashkent, samarkand, like western union, but without charges. (we have done this for people we know in london). if people want I can speak to her and organise this with her family. They will get cash and credit the account in uzb.
if not I will delete my post, and try to help myself when possible.

hh

[munisa]

hey Reapers, how are you guys managin all of these??? :rolleyes: and AMAZED!

could you please share your experiences w us, so we might be able to help s-one else in the future if needed?

i'm really impressed

[The Reaper]

hey Reapers, how are you guys managin all of these??? :rolleyes: and AMAZED!

could you please share your experiences w us, so we might be able to help s-one else in the future if needed?

i'm really impressed

We're just trying to do our best with what we have at hand.

The Stock Market is, hopefully, just a starter. I'll try to get several more large companies to donate.

Time, and dedication, that's all there's to it.

TR

[Hopeful]

Hey Reapers, I am really impressed with your dedication. You guys are great.

[Royal]

Germaniyadigi vatandosh bolla Diqqatiga:

Shu qizni Germaniyaga omon eson borip u yerda yana omon eson davolanishi uchun ancha muncha harajat boladigan shunga Germaniyadagi Masjidlar va Musulmon Jamiyatlari bilan aloqa qilip u yerda hayriya qutilarini tashkil qilish mumkinmi ???

Agarda Masjid va Jamiyatlar rozilik bersalar ularga bu qutilarni hamma yoki 3-4 inson ozlari yasab, quti ustiga va osha yerdagi musulmonlarni oz ona tillarida Hayriyaga Davat qilingan varaqlarini ham qoshib ularga jonatsalar buyam ancha yordam boladi degan fikr bor...

Eplay olasizlarmi ? Eplaysizlarku lekin shunga bosh qoshasizlarmi degan asosie savol bu yerda....

[Maroon]

Germaniya ne poluchitsya tak kak tam lechenie budet stoit 180.000 Euro. Samiy optimalniy variant eto Moskva. V nachale Moskva bila v plane nu prosto hoteli uznat toje o Germanie. Tak kak tam slishkom dorogo dumau chto Moskva samiy optimalniy variant.

[Hope]

Guys:


a US ACCOUNT for Cancer fund raising was opened! We want to raise funds to help cover all the medical expenses of my sister's cure abroad. As it was metioned above, several Medical Clinics abroad, like in Germany, are willing to accept my sister, however the estimated costs according to the clinics are very high. That's why we need to find as much money as possible.

For those in the USA:

Please, if you are willing to help contact me for details of the US account!

We've also opened an Account in UZB., so that it's easier for people who want to help from Uzbekistan.

Also, if anyone knows any organizations that I could ask help for, please let me know! I am trying to contact all the places possible to raise funds.

Thank you all for trying to help cure my sister!!! I really appreciate it!

An enormous THANK YOU to The Reapers, Mrs.Reapers for your huge contribution!!! God bless you!




Hope

[hercules]

Juda yahshi fikr Royal aka,

US dagi hamyurtlarimiz ham ozlari yashaydigan erlaridagi Masjid va jamiyatlarda e'lon sifatida yordam berishlarini sorab hat yozib (account raqamlari bilan, yirtib olib ketsa boladigan , yoki visitniy kartochka razmerida pechat qilib) osib qoysak juda katta yordam bolgan bolar edi. Nima deysiz?



Germaniyadigi vatandosh bolla Diqqatiga:

Shu qizni Germaniyaga omon eson borip u yerda yana omon eson davolanishi uchun ancha muncha harajat boladigan shunga Germaniyadagi Masjidlar va Musulmon Jamiyatlari bilan aloqa qilip u yerda hayriya qutilarini tashkil qilish mumkinmi ???

Agarda Masjid va Jamiyatlar rozilik bersalar ularga bu qutilarni hamma yoki 3-4 inson ozlari yasab, quti ustiga va osha yerdagi musulmonlarni oz ona tillarida Hayriyaga Davat qilingan varaqlarini ham qoshib ularga jonatsalar buyam ancha yordam boladi degan fikr bor...

Eplay olasizlarmi ? Eplaysizlarku lekin shunga bosh qoshasizlarmi degan asosie savol bu yerda....

[Royal]

Guys:

a US ACCOUNT for Cancer fund raising was opened! We want to raise funds to help cover all the medical expenses of my sister's cure abroad. As it was metioned above, several Medical Clinics abroad, like in Germany, are willing to accept my sister, however the estimated costs according to the clinics are very high. That's why we need to find as much money as possible.

For those in the USA:

Please, if you are willing to help contact me for details of the US account!

We've also opened an Account in UZB., so that it's easier for people who want to help from Uzbekistan.

Also, if anyone knows any organizations that I could ask help for, please let me know! I am trying to contact all the places possible to raise funds.

Thank you all for trying to help cure my sister!!! I really appreciate it!

An enormous THANK YOU to The Reapers, Mrs.Reapers for your huge contribution!!! God bless you!

Hope
Pochta idorasidan pochta qutisini sotvosayiz (eng kichigi tahminan $30cha bosa keray yiliga) ancha osonroq boladi...uda kimni nomida yozsayizam lekin osha pochta quti nomeri bosa halar kelvuradi otga:
masalan:

FORUM.ARBUZ.COM
c/o XYZ
P.O.Box: XXXXX
City, Shate, Zip Code.

Deganday.

Yordam borsa keray degan umidda.

[Prince]

May Allah Help her!

[StU]

Voobschem, predlojenie....
V pyatnisu Mrs. Reaper skazala, chto na visheukazanniy account ne perechislili eschyo ni kopeyki.
Mi (nasha kompaniya) letom organizaovivali charity bowling chempionat, v kotorom uchastvovali sotrudniki posolstv i UN organizasiy. Poluchennie dengi poshli po detskim domam.
V fevrale planiruem ustroit takoy je chempionat, tolko uje mejdu farmasevticheskimi kompaniyami (posmotrim, mojet eschyo kogo dobavim).
Na etot raz direktor, predlojil perechislit dengi na lechenie Umidi (o kom thread idyot). Dengi ne ogromnie konechno, no hot' kakie-to. Poetomu mne nujna polnaya info, esli mojno ;)

razve ee ne Malika T. zovut? Kak ee sostoyanie - kto znaet?

[StU]

Malika i Umida - ya tak i ne ponyala, kto est' kto :(

ee zovut Malika Tulaganova. Navernoe Umida - sestra :?

[Delf]

ee zovut Malika Tulaganova. Navernoe Umida - sestra :?

Her name is Malika, but after she was diagnosed with cancer her parents gave her name Umida, with hope that she will get well.


Delf.

[Hope]

Pochta idorasidan pochta qutisini sotvosayiz (eng kichigi tahminan $30cha bosa keray yiliga) ancha osonroq boladi...uda kimni nomida yozsayizam lekin osha pochta quti nomeri bosa halar kelvuradi otga:
masalan:

FORUM.ARBUZ.COM
c/o XYZ
P.O.Box: XXXXX
City, Shate, Zip Code.

Deganday.

Yordam borsa keray degan umidda.


Yahshi fikr Royal aka! Agar adashmasam, bu PO BOX deyiladi. Man harakat qilaman shu kunlarda ochishga va nomerlarini shu yerda forum'da silarga ma'lum qilaman.
Rahmat!!!

-Saida

[Hope]

ee zovut Malika Tulaganova. Navernoe Umida - sestra :?

Studentin, and Guess,

Dovochku kotoraya zabolela rakom zovut Malika Tulyaganova. Prosto roditeli nadeyas' na yeyo vizdorovleniye nazivayut yeyo Umidoy (which is Nadejda, or Hope), but that's not official. V passporte i v drugih dokumentah ona vsyo yesho Malika Tulyaganova. A ya yeyo sestra Saida.

Guess,

Thanks for considering to help my sister!!! Please thank your boss and others for their kindness. We really apprecite it! I will post Malika's Medical Report Card from doctors here in forum as soon as I receive it.

Studnetin,

Thank God, Malika is doing good so far. The doctors let her take a break for couple of weeks before her next chemiotherapy procedure starts, so she is home. She has been going through chemiotherapy treatment for couple of times, that's what the doctors said they can only do right now. Due to this treatment, her health condition improved a little bit. Otherwise, in the beginning, before she received treatment, her condition was critical.


We need to take her abroad for treatment, as doctors say they can not do anything else other than doing chemiotherapy, which basically is trying to reduce further development of cancer. But, as far as I know, chemiotherapy doesn't help to cure a patient from cancer. That's why we are trying to get her treated in some other more developed country, where the treatment for Blood Cancer cure exists. But in order to do that we need to raise funds, because the clinics are requiring a huge amount of money. As far as I know, nothing has been accumulated in the account that we opened for Malika, except for $2,000 that was found by The Reapers.

[B]Guys, if you know any organizations/people that you think might donate, or help raise funds, please help us out to reach them!!! Your help would be highly appreciated by all of us!
Please help us cure Malika from this disease!

my email address: saida_uzb@yahoo.com
phone# in UZB: 396-38-48

Thank you!




-Saida

[Hope]

Guys,

Thank God, Malika is doing good so far. The doctors let her take a break for couple of weeks before her next chemiotherapy procedure starts, so she is home now. She has been going through chemiotherapy treatment for couple of times, that's what the doctors said they can only do right now. Due to this treatment, her health condition improved a little bit. Otherwise, in the beginning, before she received treatment, her condition was critical.

We need to take her abroad for treatment, as doctors say they can not do anything else other than doing chemiotherapy, which basically is trying to reduce further development of cancer. But, as far as I know, chemiotherapy doesn't help to cure a patient from cancer. That's why we are trying to get her treated in some other more developed country, where the treatment for Blood Cancer cure exists. But in order to do that we need to raise funds, because the clinics are requiring a huge amount of money. As far as I know, nothing has been accumulated in the account that we opened for Malika, except for $2,000 that was found by The Reapers.

Guys, if you know any organizations/people that you think might donate, or help raise funds, please help us out to reach them!!! Your help would be highly appreciated by all of us!Please help us cure Malika from this disease!

I will send or PM the details of a US Account, or UZB. Account that was opened for her, or any other info, if you let me know.

my email address: saida_uzb@yahoo.com
phone# in UZB: 396-38-48

Thank you all!

[The Reaper]

Guys,

Thank God, Malika is doing good so far. The doctors let her take a break for couple of weeks before her next chemiotherapy procedure starts, so she is home now. She has been going through chemiotherapy treatment for couple of times, that's what the doctors said they can only do right now. Due to this treatment, her health condition improved a little bit. Otherwise, in the beginning, before she received treatment, her condition was critical.

We need to take her abroad for treatment, as doctors say they can not do anything else other than doing chemiotherapy, which basically is trying to reduce further development of cancer. But, as far as I know, chemiotherapy doesn't help to cure a patient from cancer. That's why we are trying to get her treated in some other more developed country, where the treatment for Blood Cancer cure exists. But in order to do that we need to raise funds, because the clinics are requiring a huge amount of money. As far as I know, nothing has been accumulated in the account that we opened for Malika, except for $2,000 that was found by The Reapers.

Guys, if you know any organizations/people that you think might donate, or help raise funds, please help us out to reach them!!! Your help would be highly appreciated by all of us!Please help us cure Malika from this disease!

I will send or PM the details of a US Account, or UZB. Account that was opened for her, or any other info, if you let me know.

my email address: saida_uzb@yahoo.com
phone# in UZB: 396-38-48

Thank you all!

Saida,

I'll send you her patients' card today. Check your e-mail.

TR

[Arhimed]

Guys,

Thank God, Malika is doing good so far. The doctors let her take a break for couple of weeks before her next chemiotherapy procedure starts, so she is home now.


Davolash necha pul turar ekan, tahminiy harajat summasi qancha?

[Arhimed]

Operasiya v Moskeve (as i know) 40,000

Da ancha ekan.

[Hope]

Saida,

I'll send you her patients' card today. Check your e-mail.

TR

The Reaper,

My dad sent me the Report on Malika's illness. It must be the same. But, I did not receive anything from you.


-Saida

[Vezunchik]

Saida (adashmasam otiz Saida edi)
Ya ne znayu vi` naverno ponimayete russkiy yzi`k.
Tak vot Saida, Naydite (skoree poprosite nayti) v Tashkente v Yunus Obode (navreno 14 kvartal) Gulyam Madaminbekov.

Eta firma ili predpriyatie vi`puskaet eliksir "G`M". Govaryat pomogaet ot mnogih bolezniy, v tom chisle i ot raka. Po ideyu odin kurs budet stoit ne bolshe 75 dollorov (kajdi`y flakon 300 gramm 15 ti`syach som).
Dumayu pomojet. Samoe glavnoe ne nado nichego lishnego, i mucheniy dlya bolnogo. prosto nado pit eta do edi`.

A takje, prosta rekomenduyte vashey sestrenke sistematicheski kajdi`y den do ili posle edi` upotreblyat kak minimum polovinu chesnoka. eta gdeto 3-4 dolki.
Govaryat ochen pomogaet ot virusov i inotel v organizme.

Inshaolloh pomojet.

I samoe glavnoe, Verte , chto Bog pomojet.
Dumayu vse eti lecheniya stoyashiee v neskolko ti`syache dollorov, ne garantiruyut vi`zdorovlenie.

s iskrennoy nadejdoy na lechenie vashey sestryonki,

[Maroon]

Saida (adashmasam otiz Saida edi)
Ya ne znayu vi` naverno ponimayete russkiy yzi`k.
Tak vot Saida, Naydite (skoree poprosite nayti) v Tashkente v Yunus Obode (navreno 14 kvartal) Gulyam Madaminbekov.

Eta firma ili predpriyatie vi`puskaet eliksir "G`M". Govaryat pomogaet ot mnogih bolezniy, v tom chisle i ot raka. Po ideyu odin kurs budet stoit ne bolshe 75 dollorov (kajdi`y flakon 300 gramm 15 ti`syach som).
Dumayu pomojet. Samoe glavnoe ne nado nichego lishnego, i mucheniy dlya bolnogo. prosto nado pit eta do edi`.

A takje, prosta rekomenduyte vashey sestrenke sistematicheski kajdi`y den do ili posle edi` upotreblyat kak minimum polovinu chesnoka. eta gdeto 3-4 dolki.
Govaryat ochen pomogaet ot virusov i inotel v organizme.

Inshaolloh pomojet.

I samoe glavnoe, Verte , chto Bog pomojet.
Dumayu vse eti lecheniya stoyashiee v neskolko ti`syache dollorov, ne garantiruyut vi`zdorovlenie.

s iskrennoy nadejdoy na lechenie vashey sestryonki,

Her health condition is critical. Kakoy tam na fig lekarstva o kotorih chelovek neznaet. Bog znaet che za firma i chto oni tam prodaut.

She has Blood cancer for Gods sake.

Ne obijaetes, ya ponimau chto vi hotite kak to pomoch, but your advise is way out of line.

[Royal]

Her health condition is critical. Kakoy tam na fig lekarstva o kotorih chelovek neznaet. Bog znaet che za firma i chto oni tam prodaut.

She has Blood cancer for Gods sake.

Ne obijaetes, ya ponimau chto vi hotite kak to pomoch, but your advise is way out of line.
take it easy... they just they advise to help...what is wrong with that...they did'nt mentone that they must do that right ?

so...come on....don't take on them please.

[Maroon]

take it easy... they just they advise to help...what is wrong with that...they did'nt mentone that they must do that right ?

so...come on....don't take on them please.

I am easy. If I were not "easy" my post would have sounded different.

[The Reaper]

take it easy... they just they advise to help...what is wrong with that...they did'nt mentone that they must do that right ?

so...come on....don't take on them please.

The reason she said what she said is because medical advice should be left to doctors. As far as I'm concerned, Vezunchik doesn't have necessary credentials to be giving out medical advices.

I understand that he said that with the best intentions in mind, but let's stay on topic. No harm no foul.

TR

[Hope]

My sister, Malika, is back in the hospital. She is going through another chemitherapy treatment process. The doctors say they need blood as soon as possible, as they have to replace her blood with new one.

I wanted to ask Is there anyone who could help us find donors to give blood for my sister in Uzbekistan. Her blood type is II(-).

Please, if you can help contact our home phone #: 396-38-48, or PM me!


Thank you all!

-Saida

[bacha]

Very sad story.

I really hope you will find donors, and someone who really can help you.

Those who think they can help, please do so. It would be great of you.

[bacha]

What if we all make youtube videos.
Small recordings, gathered in one place.
We will give Hope`s contacts for people to contact her and donate.

Someone starts, then the rest put up their videos as a response to that one. We really can get a lot of videos together. And everywhere, just a short speech asking for help. It is easy, and it can work.

P.S. Within forum, we will make sure everybody reads and reacts.
P.P.S. It won`t take much effort from each one of us. But if we put all that effort together, you will see, it will work!

[Arhimed]

What if we all make youtube videos.
Small recordings, gathered in one place.
We will give Hope`s contacts for people to contact her and donate.

Someone starts, then the rest put up their videos as a response to that one. We really can get a lot of videos together. And everywhere, just a short speech asking for help. It is easy, and it can work.

P.S. Within forum, we will make sure everybody reads and reacts.

Videoga Umidani o'zi interview bersa yashshiroq chiqadi. Sizni gapirganizni nima keragi bor. shuncha odam gapirguncha o'zinglaring moddiy yordam bermadilarignmi demaydimi

[bacha]

Videoga Umidani o'zi interview bersa yashshiroq chiqadi. Sizni gapirganizni nima keragi bor. shuncha odam gapirguncha o'zinglaring moddiy yordam bermadilarignmi demaydimi

Bizning yordamimiz, agar misol yigirmata odam vidoe quysa, 20 000 odam u videoni kurish imkoniyati buladi.

Online pul utqazish yullari rosa oson hozir, va har birimizning video commentimizda usha kontaktni berib utamiz. Forumni saqlash uchun pul yig`gan edikku. Hozir ham shunday qilamiz, faqat kuproq odamni jalb etishimiz mumkun, youtube orqali.

Uzimiz ham usha ochilgan qanaqadir online accountga qancha beraolsak beramiz.

[Arhimed]

Bizning yordamimiz, agar misol yigirmata odam vidoe quysa, 20 000 odam u videoni kurish imkoniyati buladi.

Online pul utqazish yullari rosa oson hozir, va har birimizning video commentimizda usha kontaktni berib utamiz. Forumni saqlash uchun pul yig`gan edikku. Hozir ham shunday qilamiz, faqat kuproq odamni jalb etishimiz mumkun, youtube orqali.

Uzimiz ham usha ochilgan qanaqadir online accountga qancha beraolsak beramiz.


English subtitle bilan bo'sa tushunadigan odamlar ko'payadi. Yahshi fikir. file bo'sa mediaga bersa ham bo'ladi.

har harda sizni kallangiz ham ishlab turarkan jo'ra

[bacha]

We will have some technical questions. I hope someone will help Hope open an account with PayPal or something.

Videos will be in english. We all speak english, I guess.

Once we start there will absolutely be volunteers outside this forum, who have watched the videos, and who will put up his/her own.

[Arhimed]

We will have some technical questions. I hope someone will help Hope open an account with PayPal or something.

Videos will be in english. We all speak english, I guess.

Once we start there will absolutely be volunteers outside this forum, who have watched the videos, and who will put up his/her own.

Ask Hope first whether she is agree or not

[bacha]

Ask Saida first whether she is agree or not

Of course. How much of privacy she agrees to make public and etc. has to be discussed with her.

And, whether we start or not depends on feedbacks. Lets wait for our forum users` feedbacks. ;)

[Hamid]

if somebody organises PAYPAL account for Hope, I will transfer 60 UK pounds today (bank trasnfer to UZ will cost me around 10-15 UK pounds, that is why i prefer paypal). That is the max I can give at the moment, but waitng for some cash to come into my account, will see how much we could help.
I will hope all people wil contribute something, even a 1$, then they will have some money in their hands.

When I organised a help for a family in samarkand, MegaZ had a paypal account, where I transferred some money, It was not a great help, but for that family it was a huge lift up.
Please people, eveerybody who reads through this thread, try to contribute something.

hh

[The Reaper]

Of course. How much of privacy she agrees to make public and etc. has to be discussed with her.

And, whether we start or not depends on feedbacks. Lets wait for our forum users` feedbacks. ;)

Paypal thing is a good idea. Let's have one of our distinguished members give his/her Paypal ID so that money will be accumulated in their account, and then wire transferred to the bank account in UZ.

As for the video thing, I'm not sure...

TR

[-Resident-]

if somebody organises PAYPAL account for Hope, I will transfer 60 UK pounds today (bank trasnfer to UZ will cost me around 10-15 UK pounds, that is why i prefer paypal). That is the max I can give at the moment, but waitng for some cash to come into my account, will see how much we could help.
I will hope all people wil contribute something, even a 1$, then they will have some money in their hands.

When I organised a help for a family in samarkand, MegaZ had a paypal account, where I transferred some money, It was not a great help, but for that family it was a huge lift up.
Please people, eveerybody who reads through this thread, try to contribute something.

hh
Guys she already opened pay pal account when I posted that post about pay pal she asked me some info and then she told that she opened it!
So who wants to donate can pm her and she will send payment request! I think.



PS.I have sent her pm about to post her e-mail which she uses for pay pal but she did not answer me maybe she could not get my message!

[Hope]

Saida (adashmasam otiz Saida edi)
Ya ne znayu vi` naverno ponimayete russkiy yzi`k.
Tak vot Saida, Naydite (skoree poprosite nayti) v Tashkente v Yunus Obode (navreno 14 kvartal) Gulyam Madaminbekov.

Eta firma ili predpriyatie vi`puskaet eliksir "G`M". Govaryat pomogaet ot mnogih bolezniy, v tom chisle i ot raka. Po ideyu odin kurs budet stoit ne bolshe 75 dollorov (kajdi`y flakon 300 gramm 15 ti`syach som).
Dumayu pomojet. Samoe glavnoe ne nado nichego lishnego, i mucheniy dlya bolnogo. prosto nado pit eta do edi`.

A takje, prosta rekomenduyte vashey sestrenke sistematicheski kajdi`y den do ili posle edi` upotreblyat kak minimum polovinu chesnoka. eta gdeto 3-4 dolki.
Govaryat ochen pomogaet ot virusov i inotel v organizme.

Inshaolloh pomojet.

I samoe glavnoe, Verte , chto Bog pomojet.
Dumayu vse eti lecheniya stoyashiee v neskolko ti`syache dollorov, ne garantiruyut vi`zdorovlenie.

s iskrennoy nadejdoy na lechenie vashey sestryonki,

Vezunchik,

Spasibo za soveti! I appreciate it!

Moya sestronka, Malika, shas prohodit himiyuterapiyu. That's a lot of different kinds of drugs. I do not think doctors would allow to take other drugs in addition to this. But, i will try to find out what kind of drug it is. Thanks for info abt. garlic. I'll make sure to tell them abt. it.

Since she is going thru Chemitherapy, we really need to find blood, specifically "trambotsiti", for her as soon as possible. Malika's has a II(-) blood type, it is a little difficult to find this type.


-Saida

[Hope]

I opened Pay Pal account some time ago. But, I did not quite understand how to use it. I also opened a US account in Wachovia, as a Cancer fund, and emalied the account details to those who wanted to donate, but I did not get any response back. Then, somebody told me that there is a charge even for transferring money within the US. I suppose it is better if I would give my mailing address, so that those willing to donate could just send a check instead of transferring money into account, if that's better way for some.

I also need to ask Resident to explain me in details how should I get the Pay Pal account to work. Let me figure out this, and I will post Pay pal account details here.

As for privacy about making a video, I do not care about privacy. I am ready to do anything, only so that my sister recovers from Cancer.

I was trying to get "My sister's case" announced in the Newspaper, but was not able to accomplish it yet. I am not sure how I can reach those people who work for Newspapers here in the US. It could greatly help if people would here about it, and maybe there would be somebody among them who could help us!


Please PM me if you can donate. I will send either the PayPal, or Wachovia account details, or my mailing address. Whichever way is convinient to you!


Thank you all for your HUGE help, and support! I really appreciate that.


Saida.

[R.Azimov]

Assalomu alaykum.

Hurmatli forum ishtirokchilari, bu masaladagi tushunmovchiliklar va pul yuborish muammosi ko'pchilikni qiynayapti.


Menga shunday taklif bilan murojaat qilishdi, lekin qanchalik "effektiv" ekanligini bilmayman.


"Hope" ga beminnat yordam bermoqchi bo'lganlarga men hisob raqamimni beraman, pulni mening UK dagi bank hisob raqamimga o'tkazsin.(Halifax yoki Natwest bank)

Men pulni O'zbekistonga tanishlarimga yuboraman, tanishlarim Hope ga olib borib berishadi.



P.s: Fikrimni ma'qullaganlar menga PM qilsin, Acc.detaillarimni beraman.


RA.

[Hamid]

menimcha bu yerga aniqliklar kiritishimiz kerak.
Masalan menga R. Azimovning schetiga pul qoyish ham, paypal orqali jonatish ham oson. Lekin bu asnoda chargelarni minimal qilishga qarasak, R.A. ning schetiga qoyganim yahshi boladi.

Hope'dan sorasak, agar rozi bolsa hamma UK dagi donationlarni R.A. ning accountlari orqali qilsak, US dagilarni Hope'ning ozining accounti'dan, shunda hech qanday confusion bolmaydi degan umiddaman.

R.A. Menga natwest accountingizning detallarini PM ga jonatvoring, bugun yoki kechi bilan ertaga qoyishga harakat qilaman.

hh

[Vector]

R.Azimov, acc.tizni PMimga tashavarin iltimos, buyodagi bir ikki bolla ham yuvarishadi hudo hohlasa...
forumda koproq odamlani bu ishga jalb qilish kerak...

[-Resident-]

Hammaga Salom!
Men Hope ga yozib yubordim malumotlarni kimda kim pul o`tkazmoqchi bo`lsa Hope ga pm yozinglar va e-mail adresingizni hamda qancha pul o`tkazmoqchiligingizni aniq summasini yo`zib yuboring keyin sizga Hope money request jo`natib yuboradi! Va o`sha borgan e-mail orqali siz pulni o`tkazaverasiz.
Ikkinchi usuli sizda paypal accountingiz bo`lishi kerak yoki paypal account oching va Hopega pm yozing va paypal e-mailiniso`rang paypal e-mailni olganingizdan so`ng Send Money degan option bor shu orqali jo`nataverasiz.

Diqqat pul jo`natayotganingizda albatta cash advanceni tanlang va Hope sizga request money jo`natganda ham cash advanceni tanlaydi!
Shuning uchun debit card orqali to`lagan maqul , credit card ishlatmanglar chunki cash advance uchun credit card tomonidan charge qilinishi mumkin! Bu holat agar credit cardingizda cash advance uchun fee yo`q bo`lsa mustasno!

PayPal account ochish uchun ushbu joydan kiramiz
PayPal (https://www.paypal.com/cgi-bin/webscr?cmd=_registration-run)

Kimda sav ol bo`lsa shu erda qoldiring yoki menga pm jo`nating!

[Royal]

PayPal bu ishini etkinga qiberadimi ?

Azimop biror bir haq omasa kerak bu ishidan ?!

Hozirgi kunda kasal uchun har bir tiyinniyam zarilligi bor payitda harajatni kamaytirish kerak..

[-Resident-]

PayPal bu ishini etkinga qiberadimi ?

Azimop biror bir haq omasa kerak bu ishidan ?!

Hozirgi kunda kasal uchun har bir tiyinniyam zarilligi bor payitda harajatni kamaytirish kerak..
PayPal tekin pul to`layotganlarga.
Pul qabul qilivchiga ham tekin bazi limitlari bor lekin limitdan oshgan holda ham juda ham oz miqdorda pul ushlab qoladi.
Oldin o`sha limitga yetib olaylik keyin qolgani bir gap bo`ladi.

[Hamid]

R.A. will not charge for this, this is for sure, he will try to get the best exchange rate, and send the money through somebody.
or as I posted before, there is a girl studying medicine here, so if they want to transfer money from here, I will organise it straight away. ( I have organised to send some 3000 usd last week for somebody thruugh her)
SO please people in the UK, start donating and there won't be any problems transferring the money to Uzbekistan, with inshaAllah no charge for any services.

hh

[Royal]

If anyone would like to send from UK and EC to HOPE they donation Please, send to R.Azimop he will help to deliver that money HOPE family.

If anyone would like to send to HOPE in USA and CANADA send to her direct, i will help her to deliver to her family.

I am trying to cut the expence as much possible way and no sin in saving the money, right ?

[Hamid]

Going to bank in 30 mins to donate the 60 UK pounds,
InshaAllah people will join the donation.
Other poeple may not disclose the amount.
P.S. I am announcing it to encourage people, please don't find it show off.

hh

[Demir Kağan]

How can I donate via paypal?

I have some money in it and I want to donate.

[Destankutluhan]

Dear Hope,

I am so sorry knowing that your 19 years old sister had blood cancer.
I felt sorryhaven't noticed this and would please if in charge person sent me the bank account by PM.

Thank you,

[XXL]

How can I donate via paypal?

I have some money in it and I want to donate.


I haven't noticed this and would please if in charge person sent me the bank account by PM.


Guys,thank you very much, your help would be appreciated, you can contact

R.Azimov, his post above.



Demir Cagan and Destankutluhan, please, make advertisemnet in Tukistan forumu, that girl soon

going to die if WE not help. !

[Demir Kağan]

Guys,thank you very much, your help would be appreciated, you can contact

R.Azimov, his post above.



Demir Cagan and Destankutluhan, please, make advertisemnet in Tukistan forumu, that girl soon

going to die if WE not help. !

Ok, I will.

But I must have knowledge before I let my people know it. So, to whom I must contact to learn bank and paypal accounts? To R. Azimov or Hope? Or both? Answer asap.

[XXL]

Ok, I will.

But I must have knowledge before I let my people know it. So, to whom I must contact to learn bank and paypal accounts? To R. Azimov or Hope? Or both? Answer asap.
R.Azimov have bank account in UK, so you can transfer money to that account.

and also Hope, http://forum.arbuz.com/showpost.php?p=621625&postcount=120

Demir Kağan, thanks indeed

[Demir Kağan]

I have sent a P.M. to Hope. I hope I'll get an answer asap.

Thanks XXL.

[R.Azimov]

Ok, I will.

But I must have knowledge before I let my people know it. So, to whom I must contact to learn bank and paypal accounts? To R. Azimov or Hope? Or both? Answer asap.

Saygili Demir Kagan, HOPEda para almak yuzunden birazcik anlasilmazlik oldugu icin ben para gondermek isteyen arkadaslara Ingilteredeki kendi hisap numarami veriyorum. Para hisabima indigi an hemen Uzbekistandaki arkadaslara gonderecegim, Onlar parayi Hope in evine goturup verecekler.

Eger siz paranizi Hope'a Paypal veya baska transferla gondermek isterseniz kendisiyle konusmaniz lazim.

Saygilarimla
RA


P.s: Birinchi yordam puli hisobimizga tushdi. Olloh ziyoda qilsin!




.

[Demir Kağan]

R.Azimov, ben kendim paypal ile gonderebilirim sadece. Ancak diger forumdaslar banka hesaplarina gondermek isteyeceklerdir, dolayisiyla banka hesaplari da gerek. P.M. ile iletir misin bana?

Tesekkurler.

[Royal]

I have sent a P.M. to Hope. I hope I'll get an answer asap.

Thanks XXL.

Studentin and/or The Reaapers family should have HOPE's phone number, could they call her to let her know ?

[Hope]

Guys,



Thank you so much for helping me organize this fundraiser!

For those people who want to donate money for my sister's (Malika) Cancer treatment via PayPal, here is my PayPal account email: saida_uzb@yahoo.com, or if you would like you can just PM me your own PayPal email address, and the exact amount of money you want to donate. Then I will send Request Money to you via PayPal. You will need to chose Cash Advance when you will be sending in money.

I am currently in US, hence if it is more convinient for some of you to transfer money to my Wachovia account or just send a check to my mailing address, please PM me or email me at: saida_uzb@yahoo.com. I will send the details.

Otherwise, you can just send it to R.Azimov's Bank account if it is better way! He said he would deliver it to my family in Uzbekisan.

My phone# in Uzbekistan: 396-38-48

and the Girl's name who has Blood Cancer is Malika. I will post here in forum medical reports confirming her illness with Cancer.

Thank you all for your help! Me and my family really appreciate your big contribution for my sister's treatment!

I pray God gives her cure!!!



Please let me know if you have any questions!



-Saida

[R.Azimov]

Bugun ham hisobimizga 50 POUND pul tushibdi.




RA

[XXL]

Bugun ham hisobimizga 50 POUND pul tushibdi.




RA

Oluvchi qo'l Berguvchi qo'lni kormasligi kerak deb eshitganman


Lekin bu holatta, qaysi sahiy odamlar, qaysi odamiylikni yoqotmagan odamlar

qaysi faqatgina bekordan bekor ozini ozi korsatish emas va qanaka umniylgini

emas, nechta ...shiplarni yutgani emas, balkim aslida qandey yuragi keng

odamlar ekanligini va ismi shariflari yoki niknamelari bilan tanishib qoysek

dedim.

nima deyslar?

[itashi]

HOPE'un kızkardeşinin durumu kesinleşti mi? Gidip gцren var mı? Yardım etmek isterim, yardım edecek kimseler de araştırırım. İki yakınımı kanserden kaybettim. Ama maalesef Internet ьzerinde insanların yardım duygularını sцmьren зok kimseler var.

[XXL]

HOPE'un kızkardeşinin durumu kesinleşti mi? Gidip gцren var mı? Yardım etmek isterim, yardım edecek kimseler de araştırırım. İki yakınımı kanserden kaybettim. Ama maalesef Internet ьzerinde insanların yardım duygularını sцmьren зok kimseler var.

write in english please. ;)

[Hamid]

XXL, he is saying that:
Has Hope's sister condition worsen? I would like to help, and will look for people who would help. I have lost two near people through cancer. But, unfortunately there are a lot of people, who exploit the feelings of people on the net.

hh

[Maroon]

XXL, he is saying that:
Has Hope's sister condition worsen? I would like to help, and will look for people who would help. I have lost two near people through cancer. But, unfortunately there are a lot of people, who exploit the feelings of people on the net.

hh

Could you please tell him he should re-read some of the posts coz if he did he would know that this not some joke. I guess he does not know that the Uzbek community is small.

My husband knows the girls father personally.

Mi sami lichno podkluchili direkotora kliniki ankologie chto bi on zanimalsya etim delom.

[Demir Kağan]

This was just a worry of him and now there's not a problem.

Dear Hope, I have sent you a PM which is including my paypal account and the amount I can donate. Request me and I will send. If I send, paypal takes some percent.

And also, I will open a thread tonight in Turkistan Forum to announce that there is a cancer sister and the ways that we can help her.

Your sincerely.

[Demir Kağan]

I am sorry for both bumping the thread and opening a thread related to our sister in Turkistan Forum, too late. I told I was going to open yesterday midnight but I opened today, I am really sorry. The thread is here (http://forum.arbuz.com/showthread.php?p=625473).

Dear Hope, I have accepted the request and sent the money and I wi